Tag: MS

Multiple Sclerosis and MRIs: When does it become normal?

Multiple Sclerosis and MRIs: When does it become normal?
Sunday I am getting an MRI.  It is a routine, follow up MRI to compare with the one taken when I was diagnosed with MS eleven months ago.  I nonchalantly made my appointment as I paid our mortgage and parking tickets. It all seems so casual, although it shouldn’t be such a normal part of... Read more »

We walked for MS

We walked for MS
This past Sunday my family and I were part of (our first annual) Walk MS 2013.  My sister organized, my husband flew a red eye flight to be there, my mom brought shirts, the kids kept their complaints to a minimum and we all donated. We were surprised to see the number of people flooding... Read more »

March is MS Awareness Month

March is MS Awareness Month
Six months ago I would not have clicked on that headline to read about multiple sclerosis. Last summer if you asked me what MS was I think I would have told you it is a bad disease where victims can’t walk.  In honor of MS Awareness Month, I will provide you with some of the... Read more »
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Therapists weigh in on how to tell a child their mom is sick

Therapists weigh in on how to tell a child their mom is sick
I’ve been struggling to figure out where my kids belong in this multiple sclerosis roller coaster we have been put on.  As I mentioned in my last post, a karmic email ended in my inbox asking if I had any questions for Individual and Family Connection.  Abbie Kelley and Julianne Neely are two Chicago based... Read more »

Mama, are you going to die?

Mama, are you going to die?
“Mama, JK Rowling’s mom had MS.” “That’s cool! You and JK Rowling have something in common.” I answered not knowing that when I purchased the biography of the Harry Potter author for my Hogwarts obsessed son. “Her mom died.” My heart literally was taken from my chest and thrown on the crumb-filled kitchen floor.  As... Read more »

Beginning Gilenya with an interview

Beginning Gilenya with an interview
Yesterday I began taking Gilenya, the first once-daily pill for reducing the number of relapses in people with relapsing forms of MS.  There are some serious side effects so in addition to an EKG; I was required to have my blood pressure taken every half hour for the first six hours of taking the pill. My... Read more »
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The woman behind MS Diet for Women

The woman behind MS Diet for Women
Kim was diagnosed with MS in 2010 and living a normal life. The mother is dedicating her energy into creating MS Diet for Women, a comprehensive web site with research, recipes and a community.  Her tips and grocery lists motivate and encourage me that I can heal my body with food. I had the opportunity... Read more »

My yoga practice has changed for the better since my multiple sclerosis diagnosis

My yoga practice has changed for the better since my multiple sclerosis diagnosis
I fell in love with yoga during my first pregnancy.  Once a week I practiced on my now extinct Lincoln Park health club’s carpet and connected with my baby, my breath and noticed confidence in my body and decisions. After my son was born and the advertising agency hours didn’t work with my parenting schedule,... Read more »

See you later, 2012

See you later, 2012
Last year I answered a series of questions about 2011 and had planned and actually began to answer them again this year.  In December of 2011 my answers were naive to the possibility I would receive a diagnosis with multiple sclerosis a mere 9 months later.  As a result, in answering the questions this year,... Read more »
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Five ways to anger one with a chronic disease

Five ways to anger one with a chronic disease
I’m never confident in the words I use with my friend going through a divorce, the mom at school with breast cancer or my yoga student who had a miscarriage. I strive to be authentic, although I’m sure I’ve said the wrong thing before. When I became sick, it was really never a question about... Read more »