Tag: family members of children with special needs

In My World, Every Day is Autism Awareness Day

Today is World Autism Awareness Day. I guess it’s a good idea to have a special day for autism since one out of every 68 kids in America is now diagnosed as having Autistic Spectrum Disorder (ASD). With odds like those, I suspect everyone knows someone whose life has been touched by ASD. I am... Read more »

Summer for a Child with Special Needs – So Glad it’s Almost Over

Of the many challenges that families of children with significant special needs confront, summer may be one of the most difficult. Like mine, these families are now counting the days until school resumes and life becomes more predictable and productive for their kids. Predictability is so important for the happiness of children with significant special... Read more »

When a Feel Good Story About a Child with Special Needs Feels Bad

A boy with developmental disabilities invited his classmates to his ninth birthday party and no one came. His mother reported that he waited to cut his “K-9” cake, hoping friends would show up, but they didn’t. The Chicago Tribune ran a feel good story about how a Facebook post about the non-party resulted in cards,... Read more »

How Blue Cross Blue Shield Hurts Kids with Special Needs

Shame on Blue Cross Blue Shield (BCBS) for making life even harder for parents of kids with special needs. And shame on our country for putting up with a healthcare system that is all about profits and doesn’t give a hoot for providing either health or care. According to Crain’s Chicago Business (note, this is coming... Read more »

What Summer Looks Like for a Child with Special Needs

Ethan is in full-blown refusal mode. He has realized that his “summer camp” is really a version of school, minus his familiar teachers and peers. Not much playtime or recess, even on beautiful 80-degree days. Sofia, on the other hand, is struggling at a summer camp with lots of play but no consistent schedule. Even... Read more »

In My World, Every Day is Autism Awareness Day

Imagine my surprise when the Today Show announced today was World Autism Awareness Day. “Everyone wear blue,” Matt Lauer cheerfully proclaimed, displaying a cute blue ribbon in his lapel. Well, I guess it’s a good idea to have a special day for autism since one out of every 68 kids in America is now diagnosed... Read more »

Let It Go - Help Find a Cure for Cystic Fibrosis

When she heard Let It Go won the Oscar for best song, my 7-year-old granddaughter, who has Cystic Fibrosis, was overjoyed. She watched Idina Mendel’s performance so many times that this is how her little brother reacted: I had been wondering why the character of Elsa and that song were so powerful for her. When... Read more »

Truly Including Children with Special Needs – Special Gifts Theatre

One of the most painful parts of having a grandchild with special needs is watching the child I love struggle to “fit in.” I have written previous posts about many of the things that go wrong.  So many activities others take for granted are off limits. They are willing for be her be there physically... Read more »

A Very Special Sibling of Children with Special Needs Has a Dream

I used to worry about my 7-year-old granddaughter who has older twin sisters with special needs. How could I help her explain one of her sister’s behaviors to a friend who was coming to her house for a first play date? I fumbled for an answer when the friend asked about her sister, “Why is... Read more »

Using an iPad for Special Needs Communication – A Humbling Experience

Technology is opening doors for children with special needs.  But have you ever tried talking using an iPad to communicate?  I decided to have a two-way conversation with my granddaughter who has severe apraxia and it was a real eye opener.  Instead of talking to her and then expecting her to use her TouchChat app... Read more »