Tag: cystic fibrosis

May is Cystic Fibrosis Month: Advocating for my Grandchild with CF

It’s hard to describe the pain of watching a child you love challenged by a chronic illness. When I learned my 2 ½ -year-old granddaughter had Cystic Fibrosis almost seven years ago, I felt like I had been punched in the gut. My grandchild was not supposed to struggle with a serious condition. That’s not... Read more »

May is Cystic Fibrosis Month: Having a Grandchild with CF

It’s hard to describe the pain of watching someone you love challenged by a chronic illness. When I learned my 2 ½ -year-old granddaughter had Cystic Fibrosis almost six years ago, I felt like I had been punched in the gut. Your grandchild is not supposed to struggle with a serious condition. That’s not the... Read more »

May is Cystic Fibrosis Awareness Month and One Little Girl Sings, "Let It Go"

When I learned my granddaughter Ava had cystic fibrosis almost five years ago, I felt like I had been punched in the gut. My daughter had just given birth to her second child (thankfully he did not have it). How would she manage caring for a new baby and meeting all of the demands of... Read more »
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Let It Go - Help Find a Cure for Cystic Fibrosis

When she heard Let It Go won the Oscar for best song, my 7-year-old granddaughter, who has Cystic Fibrosis, was overjoyed. She watched Idina Mendel’s performance so many times that this is how her little brother reacted: I had been wondering why the character of Elsa and that song were so powerful for her. When... Read more »