Let It Go - Help Find a Cure for Cystic Fibrosis

Let that song go...please!

Let that song go…please!

When she heard Let It Go won the Oscar for best song, my 7-year-old granddaughter, who has Cystic Fibrosis, was overjoyed. She watched Idina Mendel’s performance so many times that this is how her little brother reacted:

I had been wondering why the character of Elsa and that song were so powerful for her. When I heard the acceptance speech by the song’s writers, Kristin Anderson-Lopez and Robert Lopez, I understood. After their clever rhyming thanks came these words addressed to their young daughters, straight from a mother’s heart:

“[Let It Go] is inspired by our love for you and the hope that you never let fear or shame keep you from celebrating the unique people you are.”

Now I totally get my granddaughter’s obsession with the song. It speaks to her bravery and fearlessness in the face of living with CF. Like Elsa, she has learned to accept her condition and celebrate her uniqueness,

It’s funny how some distance
Makes everything seem small
And the fears that once controlled me
Can’t get to me at all
It’s time to see what I can do
To test the limits and break through
No right, no wrong, no rules for me,
I’m free!

Let it go, let it go
I am one with the wind and sky
Let it go, let it go
You’ll never see me cry
Here I stand
And here I’ll stay
Let the storm rage on
The cold never bothered me anyway!

Ava’s All-Stars will be participating in The Hendrick’s County, Indiana Great Strides Walk, the Cystic Fibrosis Foundation’s largest national fundraising event. The CF Foundation has raised and invested hundreds of millions of dollars to support the development of new CF drugs and therapies. Ava is lucky enough to be among the 4% for whom Kalydeco, the first drug that targets the root cause of CF, is a viable treatment. So far, she is thriving since she started taking it almost 2 years ago.

Ava collage 4_0

But Kalydeco doesn’t help the majority of people with CF. Research is helping to develop other promising new drugs, and almost all money donated to the Cystic Fibrosis Foundation goes directly to fund this research.

Please help add tomorrows to the lives of those living with cystic fibrosis. Support Ava’s All-Stars as our team walks to raise funds. Our hope is that all people living with CF can sing at the top of their lungs, Let it Go!

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