How My Son Got a New Liver: Pediatric Liver Disease (a photo gallery)

April is National Donate Life Month and Bunny, Pip, and I want you to be very aware because without organ donation and transplant, Pip wouldn’t be with us today.

More than 115,000 men, women, and children need life-saving organ transplants right now and every 10 minutes, another name is added to the list. An average of 18 people die each day waiting for organs.

This month, I’m gonna tell Pip’s story – a little bit every day. We need to improve these statistics. Learning more and talking more and sharing more is the first step.

Pediatric Liver Disease (a photo gallery)

They say a picture is worth 1,000 words.  It’s true, I suppose.

So I made a little photo gallery of the progression of Pip’s liver disease in technicolor that is worth about 9,000 words.

It’s important.  And stories like this are important, I think.  Because unless you see how sick he was and how close we came to losing him, you can’t fully appreciate the miracle that is organ transplantation.  And it is truly a miracle.

What always strikes me when I look at photos from this time is that, in almost every single hospital photo that contains an adult, we are smiling.  It’s instinctive, I guess.  It certainly doesn’t accurately represent what was happening in that room.  So photos might also tell a slightly skewed story.

When he got too sick, I stopped taking pictures.  It’s one of my biggest regrets.  I felt weird and morbid and embarrassed taking photos of a baby who was dying.  But it’s part of his story, a major part, and I should have captured it for him.

Fortunately, my brother-in-law took two photos with his phone when Pip was at his sickest.  He took them when I left the room for a moment.  He wanted them because he truly believed it was the last time he’d see Pip alive.  Those photos aren’t in this photo gallery, though.  Don’t wanna jump ahead.

Tomorrow: Never Get Sick on a Holiday

If you wanna go back to the beginning and read the whole story, click this here link.

To learn more about organ donation and to make sure you’re on the registry for your state, visit

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