Sources & Sites

Picture Your Life After Cancer

From the New York Times: "For the estimated 12 million cancer survivors in the U.S., some of life's biggest challenges begin after treatment ends. How did your life change after cancer? Show us the activities or events that have new meaning to you. Send us a photo and a brief description of how your life has changed after cancer. (Please keep images under 3MB.)"

Bladder Cancer Advocacy Network

From their site: "BCAN– the Bladder Cancer Advocacy Network – is the first national advocacy organization dedicated to increasing public awareness about bladder cancer; to advancing bladder cancer research; and to providing educational and support services for the bladder cancer community." The site has marvelous resources and a variety of online support groups.

"Letting Patients Read The Doctor's Notes," New York Times

This study shows that both patients and doctors profit when docs share their notes with patients. "Nothing about me, without me."

Gary Steinberg, University of Chicago, on treatments
Gary Steinberg, University of Chicago, on research

These two videos provide information about bladder cancer.

About Dr. Steinberg, from his website: "Dr. Steinberg has been on the faculty of the Department of Surgery/Urology since 1994, and is the Director of Urologic Oncology. He is actively involved in developing and performing innovative surgical procedures for patients with bladder, kidney, testicular and prostate cancer. He performs a large number of continent urinary reconstructions in men and women who have their bladder removed for cancer. He is also actively involved in a number of clinical trials testing newer treatments for urologic cancers, especially locally advanced bladder and kidney cancer."

Patti Hansen and Bladder Cancer, Vogue Article

Hansen, married to Rolling Stone Keith Richards since 1983, was diagnosed with bladder cancer in 2007 and has undergone a Radical Cystectomy. She tells her story here.

San Francisco Chronicle article, "Bladder cancer--common yet overlooked"

Michael Bailey is one person featured in this article. It is from him that I quote the "PhD in bladder cancer" phrase in various places in the blog.