Posts tagged "Scoliosis with genetic disorder"

Casting for Congenital Scoliosis: Meet Giana!

Casting for Congenital Scoliosis: Meet Giana!
When Giana was a baby, she was very weak in her stomach and her neck.  She was diagnosed with torticollis and received therapy for a few months and then was discharged because she seemed to be better.   At that time they also suggested us getting her heart checked out because of her barrel chest and... Read more »

We're alright, Shriner's Hospital for Children, Chicago!

We're alright, Shriner's Hospital for Children, Chicago!
As I sit at my computer to write of the weekend that ended today with a new cast, exhaustion is the first thing that comes to mind.  I am tired.  That is not to say the weekend wasn’t truly wonderful, it was just tiring.  With any good exhaustion comes limited thought process.  I’m all, I’m... Read more »

Is the cast still Lucky?

By name alone, The Lucky Cast Club, may be deceiving.  It may elude to the conclusion that all stories have happy endings with families moving on to a brace and then eventually families are free of everything.  The miracle cure.  I have been around the block a couple times and have friends who know for... Read more »
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99%... I want to share the voice of the other 99%

99%... I want to share the voice of the other 99%
Suck it, Scoliosis has been in circulation a little over a month.  In that time we have reached 1600 viewers from around the US as well as many other countries.  Our platform: To raise awareness for Scoliosis and provide support/perspective to the thousands of families who live this condition on a daily basis.  I am... Read more »

Memos from some mad Mommas Part 6

Memos from some mad Mommas Part 6
I can’t believe we are already on the 6th letter in this series.  The question posed to our Scoliosis families: What would you say to scoliosis if you had the chance?  The letters are cleansing and real.  They are written with an emotion and passion that has been lurking since diagnosis.  When your child starts... Read more »