Posts tagged "Horizontal Gaze Palsy"

Meet Miss Makenna

Meet Miss Makenna
Makenna’s Story Makenna has a very rare genetic condition in which one of the complications is progressive scoliosis. The occurance rate of progressive scoliosis in infants in toddlers is very small. For this reason, there aren’t a lot of doctors who are well versed in the latest and best treatment available.  I first noticed Makenna’s curve... Read more »

Amazing Grace: Grace's Story

Amazing Grace: Grace's Story
Grace was born on August 28, 2009.  My pregnancy and delivery were completely normal.  Grace was full-term and weighed 7 pounds and 8 ounces.  She was born with lots of curly black hair and gorgeous big eyes, and the longest eye lashes I’d ever seen.  We began the process of adjusting to a new baby.... Read more »

Is the cast still Lucky?

By name alone, The Lucky Cast Club, may be deceiving.  It may elude to the conclusion that all stories have happy endings with families moving on to a brace and then eventually families are free of everything.  The miracle cure.  I have been around the block a couple times and have friends who know for... Read more »
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Mehta Casting Wins again!

I love good news days.  Anytime I can spread the joy of one family is a good day.  Two brave casters entered Chicago Shriner’s Hospital for Children for what would seem to be another day in the OR.  The Lucky Cast Club families rallyed around the troops and sent our messages of support and prayer. Like... Read more »

We are THE LUCKY CAST CLUB!

A HUGE Thank you to Chrissy Miller and Chicago based Little Windows with Love!  You captured the spirit and essence of our group.  What started with a dream has grown to a movement.  The names and faces of these children are forever in my heart and soul.  I am blessed to be a part of... Read more »

99%... I want to share the voice of the other 99%

99%... I want to share the voice of the other 99%
Suck it, Scoliosis has been in circulation a little over a month.  In that time we have reached 1600 viewers from around the US as well as many other countries.  Our platform: To raise awareness for Scoliosis and provide support/perspective to the thousands of families who live this condition on a daily basis.  I am... Read more »
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Memos from some mad Mommas Part 6

Memos from some mad Mommas Part 6
I can’t believe we are already on the 6th letter in this series.  The question posed to our Scoliosis families: What would you say to scoliosis if you had the chance?  The letters are cleansing and real.  They are written with an emotion and passion that has been lurking since diagnosis.  When your child starts... Read more »

Memos from some mad Mommas Part 5

Memos from some mad Mommas Part 5
The questioned posed to our scoliosis parents: What would you say to scoliosis if you had the chance?  The answers are being shared in the Memos from some mad mommas series.  A new letter will run until all the voices are heard.  This has been incredibly cleansing for these families.  Thank you for taking the... Read more »

Trick or Treat?

Trick or Treat?  A question posed in the innocents only children can bring on this O Hallows Eve.  Usually followed by a snickers bar and a polite thank you if we are lucky.  Little children dressed as ghosts and goblins, witches and pumpkins, dinosaurs and daisy’s with one thing on their mind…bag that candy!  For... Read more »
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Dear Scoliosis-Memos from some mad mommas!

Dear Scoliosis-Memos from some mad mommas!
I am fortunate to be surrounded by amazing parents on this journey.  Each has taken a look at the devil and said not my child.  This week I posed the question to our Lucky Cast Club support forum, what would you say to scoliosis if you had the chance?  The letters are cathartic, cleansing and... Read more »