Posts in category "Uncategorized"

The Plague...bring it on!

They say God never gives you more than you can handle.  I can say we are definitely a sturdy stock.  First came Infantile Scoliosis,  3.5 years later the flood that started the rebuilding, 31 days in a hotel to return home to a half finished house.  The skin problems started about 2 weeks after we... Read more »

Dear Self...Lessons learned 3.5 years post diagnosis

With a steady influx of families new to this diagnosis, it takes you back to  the early days of uncertainty and shear terror at what lies ahead.  I have spent so much time looking forward that looking back is often too painful to face.  I remember the first few years as a constant roller coaster... Read more »

Nothing like being late to the party...Happy Donna Day!

In our family we call our perpetual lateness, Diefenbaugh time.  Today I am running on Diefenbaugh time, once again late for the party.  I couldn’t let the day go by without joining in the Chicago Now festivities and celebrating the joy that is Donna.  My introduction to ChicagoNow and the reason we have this beautiful... Read more »
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When bad skin, happens to a good cast.

Jimmy Greenfield, our beloved leader at Chicago Now, posted today the statement, there are two kinds of bloggers, those who blog and blog consistently and those who don’t.  I am the latter as of late and don’t want to be this person.  I have let life get in the way of what I want to... Read more »

If this post gets a million "likes" my husband still won't let me get a dog.

If this post gets a million "likes" my husband still won't let me get a dog.
Monday I was browsing facebook and came across a page.  These  precious kids with a sign reading, “If we get a 1,000,000 likes are parents will let us get a puppy!”   I wanted these kids to have a puppy.  I liked and then noticed a more recent post saying they reached their goal in record... Read more »

How many more sleeps? Even Infantile Scoliosis eventually grows up!

Casting a very aware 4 year old is vastly different from our experience casting an infant.  This morning the questioning once again started, “How many more sleeps until my cast off party?” I pull my phone from my pocket and answer, ” 14 more sleeps William.” He then goes through the process, “then you will cut... Read more »
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When the waters come

I had all these grand plans for posts during the holidays.  I have in fact written a beautiful series in my head.  Life has a way of throwing you off kilter when you least expect it and mine came 35 days ago in the form of a flood.  December 5th started as normal as a... Read more »

I wish you enough

I wish you enough
Sitting down to write the 100th post for Suck it, Scoliosis, it seems so appropriate to meet this milestone just a week after our 3 year anniversary, 1 week after returning home from an unbelievable weekend for my Lucky Cast Club sisters.  Humble is the primary word that comes to mind when I look back on our journey. ... Read more »

Hold the iPad, I am giving the gift of Hope this holiday season

Hold the iPad, I am giving the gift of Hope this holiday season
Cast 14 has come and gone.  We were met with expected news; no change…see you in 12 weeks.  In the back of our minds, the glimmer of hope sat dormant.  Afraid to hope too much for a reprieve from our 4th year of casting, yet some shards still manage to hit barbed in your outer shell at... Read more »
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Time: The gift that keeps on giving.

I know I am a scoliosis blog and I have to say today I should be writing a post about preparing for what will be our 14th cast, in 3+ years of casting.  We leave tomorrow for our home away from home, the beautiful Windy City awaiting our arrival.  As of this morning, my home... Read more »