As one of the founders of a support family for families with Infantile Scoliosis, I have seen and heard many responses to the twists and turns Infantile Scoliosis can bring. I consider myself a faithful person and try to live a good life and support others. I started this process pleading with God for answers. It never felt the right course of prayer but was formed in desperation. In the first year of our journey I met a mom via hospital referral who changed the way I live my life. My beautiful Sarah and I met when the nurse at Shriners asked me to call. I make dozens of these calls each year and have terrible anxiety each time I do. I fight my fears and make the calls because I know on the other end of the phone is a scared parent new to the journey. I called my Sarah and although our stories were vastly different we clicked instantly. Talking to Sarah that day was like my daily calls with her today. She was kind and funny and fully in reality about her beautiful girls course of treatment. Giana has congenital scoliosis and would cast until she was old enough to undergo surgery. For 3 years the three musketeers casted together. Our families became one and we anxiously counted days until we could see each other again. Sarah is my heart and I can't imagine one day without their family being apart of our story.
We have been blessed by time but time is slowly edging closer. Gi will have her first surgery at the beginning of the year. While the Chi-town sisters and I fret and plan, shop and coordinate schedules, our Sarah stays the constant source of grace. While we worry she tells us worry doesn't help change their outcome. Giana's life was predetermined by God and only he knows the plan. We need to trust it is in his hands and with his grace all will be fine.
In this journey I have found it is easy to have faith when things seem to be going well. Progress is marked and praise to our heavenly father abounds. Sarah has taught those in our little group, praise should be given freely without reservation for the plan, known or unknown, thankful hearts, faithfilled hearts open to whatever lies ahead. God doesn't make bad things happen to our kids because we were bad or not faithful enough. It doesn't happen because we didn't pray enough or give enough, rather it is part of their story, gifts they will someday share with others who are on this journey. We will find strength in each other and we will draw strength through God, Giana & all our kids are in his hands.
I took a hiatus from this blog to process the changes that have occured in our lucky cast club family. We have 4 families we love and adore who will face surgical interventions in 2014. As the hits were coming, it was too much to process publically. With each surgery, a new family will enter the process or graduate with success. In 2014 I vow to share all the wonders our Superhero kids accomplish whether it be surgery, recovery, casting, or graduation and emBracing new journeys. They were all part of a greater plan and I am thankful to be allowed to play a small part in their journey.
From the Chi Town Sisters, I want to end this Christmas Eve with a few verses that remind me of our Sarah:
I Corinthians 13:4-7 : "Love is patient, love is kind. It does not envy, it does not boast, it is not proud. It is not rude, it is not self-seeking, it is not easily angered, it keeps no record of wrongs. Love does not delight in evil but rejoices with the truth. It always protects, always trusts, always hopes, always perseveres."
Philippians 4:13: "For I can do everything through Christ, who gives me strength."
“When God Created Mothers"
When the Good Lord was creating mothers, He was into His sixth day of "overtime" when the angel appeared and said. "You're doing a lot of fiddling around on this one."
And God said, "Have you read the specs on this order?" She has to be completely washable, but not plastic. Have 180 moveable parts...all replaceable. Run on black coffee and leftovers. Have a lap that disappears when she stands up. A kiss that can cure anything from a broken leg to a disappointed love affair. And six pairs of hands."
The angel shook her head slowly and said. "Six pairs of hands.... no way."
It's not the hands that are causing me problems," God remarked, "it's the three pairs of eyes that mothers have to have."
That's on the standard model?" asked the angel. God nodded.
One pair that sees through closed doors when she asks, 'What are you kids doing in there?' when she already knows. Another here in the back of her head that sees what she shouldn't but what she has to know, and of course the ones here in front that can look at a child when he goofs up and say. 'I understand and I love you' without so much as uttering a word."
God," said the angel touching his sleeve gently, "Get some rest tomorrow...."
I can't," said God, "I'm so close to creating something so close to myself. Already I have one who heals herself when she is sick...can feed a family of six on one pound of hamburger...and can get a nine year old to stand under a shower."
The angel circled the model of a mother very slowly. "It's too soft," she sighed.
But tough!" said God excitedly. "You can imagine what this mother can do or endure."
Can it think?"
Not only can it think, but it can reason and compromise," said the Creator.
Finally, the angel bent over and ran her finger across the cheek.
There's a leak," she pronounced. "I told You that You were trying to put too much into this model."
It's not a leak," said the Lord, "It's a tear."
What's it for?"
It's for joy, sadness, disappointment, pain, loneliness, and pride."
You are a genius, " said the angel.
Thank you my Sarah for being one of my many gifts! I love you with all my heart. Merry Christmas my beautiful friend.
Until next time, keep it CuRvY~
Catie (Scoliosis Sucks) D.
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