Scoliosis Awareness Month 2013; Waiting for our "Rudy" moment.

Scoliosis Awareness Month 2013; Waiting for our "Rudy" moment.

I absolutely adore the movie Rudy.  Maybe it is my love of Notre Dame football or more likely the story of the underdog overcoming all obstacles for a hard earned few minutes of passion in the play.  Whatever the reason, when the crowd begins chanting, "rudy, Rudy, RUDY!" the tears start forming.  Eventually my lip will quiver and the flood gate breaks as I weep and chant, clapping with the fans on the TV in my living room.  EVERYTIME!  Today while watching our friends casting story, I once again experienced my Rudy moment.  I have seen Jackson's video many times and yet when the music changes and cast #9 is captioned on the screen, the tears just start to flow.  JOY, Admiration, Longing, Hope.

Jackson's party was the first cast off celebration we attended with our Lucky Cast Club family.  The day was a perfect ray of HOPE for our small group.  The pinnacle of the evening came at dusk with a special prayer of hope being lifted to heaven for all our friends at the time still in the process.  Music began, Chinese laterns were lit.  As each lantern ascended to heaven, a name was read with silent prayers and tears for our friends still in the casting journey.  Tears of joy, tears of sorrow and an intense fire was lit that very night.  I relive our first moments of fear and joy while watching Jackson's casting story and many years later, I am still moved by the final slides....VICTORY, Jackson's Rudy moment.

I dream about William's party.  It has changed many times in the last 3.5 years.  I started planning a party for an infant, then toddler, now little boy.  I am not sure if we will all chant, william, William, WILLIAM, or if we will dress as superheros.  The seasons change from a Summer pool party, to Fall bash with hayride.  One thing that remains constant is my belief it will happen.  Rudy Ruettiger spent 2 years at Holy Cross Junior College and faced 3 rejection letters from Notre Dame before finally being accepted to his dream school.  He was not a starter, he worked hard and became a loyal member of the practice team.  He dressed for one game and played in a total of 3 plays.RudyQuote-300x188

This June, I am praying each of our friends have their moment.  I know for some of us, it will come in different forms, not all of us will reach the magic number and emBrace a new journey.  We can celebrate the changes and embrace the life we are each given.  We can find peace in our choices and comfort from our crowd of raving fans in the transitions!

 

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  • Thank you for reminding everyone that June is National Scoliosis Awareness Month. Actually, it is promoted in England and perhaps elsewhere in the world, so I guess it is international. I hope awareness is raised and people contribute to Shriners, Children's Hospitals, National Scoliosis Foundation and may other organizations devoted to helping kids with scoliosis. I had not seen Jackson's story until today. Quite inspirational. I am so happy that Jackson's family shared its video diary with the world. Casting... well, to use your term "sucks". You can only imagine how I felt about surgery for my 9 year old son Anthony Wainess with a 105 degree curvature. But there is hope for Anthony as well as Jackson and William, if they ultimately need surgery. My "Rudy" moment arrived on May 7, 2013, when two MAGEC magnetic growth rods were implanted (I hate that word) in Anthony at Rady Children's Hospital San Diego. Anthony has not needed even a Tylenol since leaving the hospital. He instantly grew 2 inches. He just had he first remote control lengthening of his magnetic rods on June 3rd. It did not require any surgery and was totally pain free! Obviously, Anthony is still facing more hurdles in the future, but huge advances are being made for kids with scoliosis. It's unbelievable to me that the FDA has not yet approved the magnetic rods in the U.S, Anthony miraculously got limited "compassion" permission from the FDA for his surgery, otherwise I was prepared to move to England for the surgery where it is performed more often.

  • Anthony's story is amazing! The determination and tenacity of hope fill my soul. We in our casting journeys have no idea what adolescent growth will mean to our individual stories but sharing Anthony's journey gives us renewed faith in each "curve" that lies ahead. Hope lives in each step whatever lies ahead. anthony, Anthony, ANTHONY!!! We are cheering for you & hope you can feel it!!

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