Sitting down to write the 100th post for Suck it, Scoliosis, it seems so appropriate to meet this milestone just a week after our 3 year anniversary, 1 week after returning home from an unbelievable weekend for my Lucky Cast Club sisters. Humble is the primary word that comes to mind when I look back on our journey. 3 years ago I was overcome with fear. Amy, Makenna's mom, started her journey prior to Chrissy, Jackson's Mom and I. She held our hands, led us through the process, past the pitfalls and together, we started on a new life. They were my "phone a friend, lifeline" during the early days. We didn't have all the answers but we had each other. We were still in the heat of it all, going through each day on a wing and a prayer. Clinging to each other out of fear of being alone. We were still "rare", so few who would understand what we were going through but as we found our groove, we started to find room to dream again. Dreams are something that need to be nurtured and culivated. They need air to grow and inspiration to fly. Together our dreams took wing.
Our dream was the Lucky Cast Club. We soon were met on our journey by new friends. In my phone they are still listed as they came to me: Shirley with First Steps, Sarah Giana's Mom, Cathy from WI-Kiyas Mom, Kelli & Douglas Indy-Riley's Mom. They were families I was to call and share our casting story with. My instructions from the hospital, make sure they are ok and prepared for cast day. Mission accepted. I have 37 additional names in my phone as well that were left on my voicemail. Each one contacted by one of the above names, each one welcomed and comforted by a stranger.
I came across "I wish you enough" on facebook this morning. It touched me beyond words and seems to capture my thoughts of the many families I have met on our journey."I wish you enough sun to keep your attitude bright.I wish you enough rain to appreciate the sun more.I wish you enough happiness to keep your spirit alive.I wish you enough pain so that the smallest joys in life appear much bigger.I wish you enough gain to satisfy your wanting.I wish you enough loss to appreciate all that you possess.I wish you enough hellos to get you through the final good-bye."
They say it takes a minute to find a special person. An hour to appreciate them. A day to love them. And an entire life to forget them.
- Author Unknown
We found love in our friends on this journey. We each started as strangers and bonded through experience, support and devotion. I have friendships with families which started in neccessity and have become forever. They changed my selfish ways and gave me something bigger than one cast or just my child to reflect on. I love them to my soul and can tell you when Mom's weekend ended I felt an ache inside at leaving their sides. The laughter, compassion and love is "Enough" to fill my heart for another year, although I pray we don't have to wait a year to embrace. Their daily vigilence is my motivation to keep celebrating the moments and seeking the sun. We found love in a hopeless moment in our lives & I pray our story will encourage those new to the journey to seek these same bonds. We are more than a support group, we are a soft place to land, a hand-up when you fall, encouragement when you see darkness, & a second home."We are just a group of parents, whose kids have Progressive Infantile Scoliosis..." Until next Time, Keep it CuRvY~ Catie(Scoliosis Sucks)D.