The past few weeks in our house summer has been at the center of deep discussion. We are entering summer number 3 in cast. For many families this is the point where they will most likely take a break from casting and move to a brace for summer. Last summer, we took the bold move and left William out of cast for 10 days while we were on vacation. Those 10 days were crammed with summer play. We visited the pool as often as possible, spent 7 fabulous family days at the beach, we snapped countless pics of our little guy completely naked frolicking in the outdoor shower or traversing the path to the beach. Each moment was firmly etched in my memory. We were carefree and had the most fun. We watched his spine and thankfully it's movement was minimal. Fast forward and we are 6 weeks from our return to the beach. We have rented a house which we can't afford at the same beach we have loved for going on 18 years. Yes I did say we can't afford it but on the flip side it will be hard earned money we can't afford not to spend. If summer is about making memories the memories made last year in those 10 days will have sustained my soul for what will be 365 days. Taking time to feed your soul in a life riddled with unknowns is a good investment in our family. I will be pimping out our old junk in a yard sale, hosting as many 31 parties as I can fit into the month of June, & yes selling my beloved 15 year anniversary present on EBay to pay for this trip. When the boys have their feet hit the sand and the sound of the waves wash away a year of heavy it will be worth every minute spent in preparation.
As of this minute, summer is scheduled for 1 week. It will be 9 days of out of cast time. We are now discussing extending the summer by 1 more week. That would equal 16 days out of cast. It seems stupid that something so simple as 7 extra days has plagued us to this degree. The arguments on both sides are equally compelling.We have come so far, do we really want to risk regression by taking those 7 extra days? Although Williams numbers have stayed the same for the past 4 casts, the appearance and alignment of his spine has definitely improved. Is this worth risking? The other side: If his spine is going to hold it won't move in the extra week. He has had 3 summers in cast and is looking at at least another year ahead, he deserves this break.
As I have contemplated both sides to this debate I have been hit with so many stupid thoughts and emotions. Each year as we approach summer I have told myself we would take a brace break at XXX point. Each time that point draws near I convince myself we are almost at the finish line and it's not worth risking his outcome. There was so much HOPE that filled these decisions and yet I find myself facing this for summer #3. I fear in some ways that my acceptance of our circumstance has hampered the HOPE that has fueled us this far. Chad is my rock. His HOPE has never wavered. He is steadfast and strong. He is the one who answers questions from our tiny toddler with affirmative answers. You have to wear your cast because without it your spine will curve and hurt your heart. Me I come up with analogies and dissertation to convince him it is cool. I am the one pushing for the extra week while my beloved is holding the HOPE that this might be the one.
There is no good answer or solution to this query. If we choose to enjoy our two weeks we will never really know how it affected the outcome. We have stayed true for 3 years and he has thrived in cast. There is the side of me that hates to test fate in that manner. The other side sees a little boy who has been a trooper as his big brother has enjoyed 3 pool parties in the first week of summer, a Papaw who has kept his boat in the barn for the past 3 summers because he couldn't handle the thought of going out without his buddy & a very pale family with a house that looks like a toy box has thrown up during our first 100 degree weekend this year. Neither decision will come easy and we will hopefully support each other in whichever road we choose.“Hope Smiles from the threshold of the year to come, Whispering 'it will be happier'...”
― Alfred Tennyson
The whisper of the beginning of our summer say's it will be happier. It is up to us to make this happen. Neither acceptance of circumstance nor the decision we make can damper the ever present smile from HOPE. It is nestled inside each step and moves us forward with each new twist in the road.Until next time, Keep it Curvy~
Catie (Scoliosis Sucks)D.
Stay tuned for June-Scoliosis Awareness Month! We are planning to paint the blog with all things CuRvY! 30 days of inspiration from our Lucky Cast Club Friends!