99%... I want to share the voice of the other 99%

99%... I want to share the voice of the other 99%

Suck it, Scoliosis has been in circulation a little over a month.  In that time we have reached 1600 viewers from around the US as well as many other countries.  Our platform: To raise awareness for Scoliosis and provide support/perspective to the thousands of families who live this condition on a daily basis. 

I am the parent of the 1%.  1% of children are diagnosed with Infantile Scoliosis which is defined as under the age of 3 years of age.  Of that 1%, my son falls into the category of 20% of 1% who are considered progressive infantile scoliosis.  This simply means my son's scoliosis was diagnosed in infancy and will not self resolve without intervention. 

I love the impact we have had in sharing our stories with other families.  If one story has reached a family who didn't know Infantile Scoliosis existed, helped you better understand what your own child may be facing or gave you hope that there is a non-surgical cure for this condition, then I am grateful for this platform.  What I want to do is cast a wider net.  Share the stories of the other 99% of families who are diagnosed later in life.  I want to show the face of juvenile scoliosis.  Share your triumphs and tribulations.  I want to effect a positive change in your schools and give you the platform to reverse the myths of your condition.  I want to allow you to embrace your curvy posture and find a safe haven to share your anxiety.  If you are a family of the other 99% and want to share please feel free to contact me.  I would be happy to allow your story in  your own words or be willing to write your story for you.  If you simply have a question or comment about potential treatment, I want to open my platform for you to seek your answers.  Thank you in advance for your participation.  luckycastclub@yahoo.com You can also friend us on facebook at either Lucky Cast Club or Suck It, Scoliosis.  Until next time, keep it curvy! 

Catie(Scoliosis Sucks) D.

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