Suck it, Scoliosis has been in circulation a little over a month. In that time we have reached 1600 viewers from around the US as well as many other countries. Our platform: To raise awareness for Scoliosis and provide support/perspective to the thousands of families who live this condition on a daily basis.
I am the parent of the 1%. 1% of children are diagnosed with Infantile Scoliosis which is defined as under the age of 3 years of age. Of that 1%, my son falls into the category of 20% of 1% who are considered progressive infantile scoliosis. This simply means my son's scoliosis was diagnosed in infancy and will not self resolve without intervention.
I love the impact we have had in sharing our stories with other families. If one story has reached a family who didn't know Infantile Scoliosis existed, helped you better understand what your own child may be facing or gave you hope that there is a non-surgical cure for this condition, then I am grateful for this platform. What I want to do is cast a wider net. Share the stories of the other 99% of families who are diagnosed later in life. I want to show the face of juvenile scoliosis. Share your triumphs and tribulations. I want to effect a positive change in your schools and give you the platform to reverse the myths of your condition. I want to allow you to embrace your curvy posture and find a safe haven to share your anxiety. If you are a family of the other 99% and want to share please feel free to contact me. I would be happy to allow your story in your own words or be willing to write your story for you. If you simply have a question or comment about potential treatment, I want to open my platform for you to seek your answers. Thank you in advance for your participation. firstname.lastname@example.org You can also friend us on facebook at either Lucky Cast Club or Suck It, Scoliosis. Until next time, keep it curvy!
Catie(Scoliosis Sucks) D.