For those of you just getting to know me, I am a facebook fanatic. It pains me to say this but it's how I stay connected to families in the Lucky Cast Club including those of us from Chicago Shriner’s Hospital for Children as well as families from many other centers across the country. I find myself pimping scoliosis around ever turn with my facebook platform. Hey Folks, pimpin aint easy. My husband and I share an account because he is too lazy to keep up with his friends so he expects me to do it for him. He reads every entry and I post/respond for him. It’s lazy at it’s finest. After nearly 18 years of marriage, I am meeting many new people who know the Chad of ChadandCatie.
Approximately two weeks ago I received a friend request from someone named John Scoliosis Isdell. In my half sleep riddled mind I was thinking who would give their child the middle name Scoliosis, sick F--kers. I clicked on his profile and realized he used the Scoliosis to get my attention. It worked. John and I are now friends on facebook. As I perused John's profile I clicked on links which lead me to his web page: www.scoliosisinternational.org I don't know how John found me on facebook but I have to believe it was divine intervention. John is a scoliosis patient who was diagnosed at the age of 14 years old with a curve that progressed rapidly in a short time frame. He is a survivor of rod surgery and has chosen to make his mission in life to improve the lives of those living with Scoliosis and raising awareness for the condition. Already John and I are kindred souls. As I continued to read further and click on more links, I found that John is in the process of creating a safe haven in Chicago for families enduring spinal surgery to recover in the comfort of a home he will call Scoliosis House. WHAT AN AMAZING idea. If you have been with the Lucky Cast Club since it's inception, you might remember the rant that was the catalyst to movement. It was a long rant where I laid out my dream for families living with Infantile Scoliosis. My biggest and most outlandish wish: The Lucky Cast Club house for patients coming in for casting to have a home and haven in Oak Park to relax the night before OR. Um John...you had me at hello.
After reading so much about John it was time to write my first Dear John letter…
Thank you for having the tenacity and courage to create something so amazing for families in Chicago as well as world wide. I want to offer help in whatever small way I can. I am one of the founding families for a support group for families living with Infantile Scoliosis. My son was diagnosed at 10 months old with a 67 degree curve. We have been using Derotational Casting to treat his curve and have seen wonderful success. We spend a lot of time doing “Fun” raisers to support the centers treating children with Scoliosis both in Chicago and around the country. I would love to discuss how we can join forces in raising awareness and spreading hope for families facing both infantile and juvenile scoliosis. I have some ideas if you have the time to respond.
Catie Scoliosis Sucks D.
No swearing or pleading. It was a letter my mom could be proud of. I was sucking up to John in just the right amount. Not too much as to scare him off with my charity stalker behavior but not too little to where he thinks I am a fraud. I am a happily married women but I have a total charity crush on this man I have never met. John is a man of few words he did however reply and thank me for sharing William's story and the Lucky Cast Club.
The LCC and Scoliosis International need to join forces. We are totally rocking the Infantile Scoliosis world and he is a rock star in the Juvenile Scoliosis world, we have similar goals and platforms, and we both seem to be passionate about reaching out to others. We need 501c3 status and he already has it. Yes I know that is totally self serving, but it never hurts to put that out there. It could be a marriage made in heaven. Hell I’ll even agree to respond on his facebook page for him, manage his friends, mention him in my Chicago Now blog. Whatever it takes. I have that kind of skill John. You are a man of few words and I have more words then I know what to do with some days. Think about it John.
If you can donate to the Scoliosis House, please do. www.scoliosisinternational.org The recovery from spinal surgery is a real bitch and requires extended hospital stays to manage pain and get patients mobile again. Scoliosis House will offer patients and their families the opportunity to recover with skilled nursing care outside the confines of a hospital once their pain has been managed. What John has dreamed is amazing and we can have a tangible role in easing the struggle family’s face when dealing with surgical intervention.
Thank who ever lead John Scoliosis to ChadandCatie’s facebook account. If we never have further correspondence, which would be RIDICULOUS, just knowing he had an idea and was able to see it through to reality has encouraged me to keep moving forward, learning and growing. It is a true SUCK IT, Scoliosis moment. Until next time keep it curvy!
Catie ScoliosisSucks D.
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