Posts tagged "pediatric cancer"

Acorns in Cancerville

Yesterday marked six years since we moved to Cancerville, when our Donna was diagnosed with a rare and aggressive brain tumor, papillary meningioma. I write the name of the bastard because it is so neglected in the cancer world that there is no treatment for it.  I like to call it out by name. Yesterday... Read more »

Internet Hate: What You Don't Know Might Hurt Me

Yesterday, I called “Uncle.”  I was done.  Over.  Wounded.  A tearful, salty mess on Valentine’s Day, when I thought I was long past those days.  It wasn’t my husband or long lost secret crush that brought me to that place, but strangers.  Yep, freaking strangers on the Internet. I know, someone call the wahmbulance.  Mary... Read more »

Delivering Christmas

A few weeks ago a request for donations crossed my path on Facebook.  I use social media for fundraising, so it caught my eye.  Cal’s All Star Angel Foundation, a charity focused on making life for kids with cancer better, was seeking donations for its 12 Days of Christmas program. For the past three years,... Read more »
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Donna's Cancer Story: One Year Later

I feel a little bit like I am walking on air this September, weightless, unanchored. For the first time since 2006, I am neither living through nor writing about our time in Cancerville.  This year I am simply cutting and pasting.  Literally, cutting and pasting, moving the daily installments of Donna’s Cancer Story from this... Read more »

Mary Tyler Mom Goes to Springfield

Photos by Kristen Schmid, courtesy of the University of Chicago Medicine I’m a reformed political junkie.  Vice President of the College Democrats, yo, class of 1991.  We won’t talk about the fact that my boyfriend was a College Republican.  Somewhere along the line, I lost the faith.  Politics don’t move me the way they used to and... Read more »

Bald Heads, Clear Eyes, Full Hearts, Can't Lose

Saturday was the big St. Baldrick’s shaving event our charity, Donna’s Good Things, sponsored.  I am still reeling.  To be on the receiving end of such love and support and action is humbling, astounding, and quite honestly, a little paralyzing for me. At the root of all of this is Donna, our little girl.  The... Read more »
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Cancer Can Suck It.

Five years ago today I stood over my daughter as she lay in a hospital bed. She had been admitted the night before primarily just to expedite an MRI because of some concerning symptoms and loss of developmental milestones over the previous few weeks.  She awoke early, around 5, groggy, and vomiting.  I changed her... Read more »

Happy Donna Day! It's a Good Thing!

This is one of dozens of blog posts that will be published today, Valentine’s Day, to raise awareness for St. Baldrick’s, the largest private funder of research for pediatric cancer.  All of these posts honor Donna, Good Things inspired by her, and were written by some of the most amazing people I have the privilege... Read more »

Social Media 101: My Barbie Mea Culpa

Five days ago I wrote a post about the bald Barbie facebook page that had been crossing my feed quite a bit in the two weeks prior to that.  As the mom of a girl who died of cancer, lots of folks assumed I would be interested. That was a safe assumption.  Receiving those posts... Read more »
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Donna's Cancer Story: Choosing Hope

This is the thirtieth of thirty-one installments of Donna’s Cancer Story, which will appear daily in serial format through the month of September to recognize Childhood Cancer Awareness Month.  Each post will cover one month of Donna’s thirty-one months of treatment. Cancerville is full of subdivisions and part of the deal when you are relocated there... Read more »