Category: Lupus

My interview with Lupus Research Alliance

My interview with Lupus Research Alliance
I was so humbled and delighted that Lupus Research Alliance filmed an interview of me to inform others about my experience with lupus. A fellow lupie (what people with lupus are called) and Facebook friend brought the interview to my attention. This interview was done about two years ago which I had totally forgotten about.... Read more »

Caring for a sick child with autism when you have lupus is dreadful

Caring for a sick child with autism when you have lupus is dreadful
Just when I thought it was safe to go into the water, my son Kameron who has autism, did it to me again–he comes home with a cold from school and I bear the brunt of warding off the germs by any means necessary. I mentioned “again” because Kameron brought home a nasty virus from... Read more »

It's about time that Toni Braxton is making more television appearances about her lupus diagnosis

It's about time that Toni Braxton is making more television appearances about her lupus diagnosis
I have been writing for a few years about why certain celebs who have lupus do not talk about it publicly. Thankfully, singer/entertainer Toni Braxton is making more television appearances opening up about her lupus diagnosis. Braxton was on the Dr. Phil Show this week discussing it on an ending segment. I thought the topic... Read more »
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There is still time to register for Chicago Lupus Walk 2018

There is still time to register for Chicago Lupus Walk 2018
The Lupus Society of Illinois is hosting its annual Chicago Lupus Walk Sunday, September 23, 2018. It’s from 9am-12 noon and will be located at Lincoln Park near Stockton Drive and LaSalle, across from the Chicago History Museum parking lot. As a lupus sufferer and survivor, I have had the pleasure of participating at this... Read more »

I'm sure that Ava DuVernay will let Aunt Vi live from lupus on Queen Sugar

I'm sure that Ava DuVernay will let Aunt Vi live from lupus on Queen Sugar
Filmmaker Ava DuVernay is the creator of Queen Sugar which airs weekly on the Oprah Winfrey Network (OWN). Millions tune in to see the drama of estranged siblings save their patriarch’s sugar cane farm. Lately, the spotlight has been on Violet Bordelon, or Aunt Vi as she’s dearly called. Aunt Vi has lupus, an autoimmune... Read more »

Nova Bordelon asks "How do you manage lupus?"

Nova Bordelon asks "How do you manage lupus?"
Nova Bordelon is a character on Ava DuVernay’s “Queen Sugar“, shown weekly on the Oprah Winfrey Network. Last season, Queen Sugar introduced the lupus disease to its viewers via character Aunt Violet. I was so pleased and impressed to see this because there are millions (including celebs such as Toni Braxton and Nick Cannon) who... Read more »
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Why it's important that lupus sufferers network

I cannot stress enough the importance of why lupus sufferers should network. Lupus is such an isolating disease because it affects your quality of life. Lupus attacks its own tissues, causing damage or potential damage to internal and external organ systems. Joint and muscle pain are major complaints among the lupus community. Not being able... Read more »

The roughest part about having a lupus flare is the physical therapy afterward

After having several lupus flares over the years, the roughest part about them is enduring the physical therapy afterward. Lupus is an autoimmune disease where the immune system attacks itself. When this occurs, there may be damage or potential damage to internal and external organ systems. Each flare is different but people with lupus have... Read more »

5 Ways To Recover From A Lupus Flare

I want to share what I believe are five ways to recover from a lupus flare. Lupus is an autoimmune disease where the immune system attacks itself instead of fighting off invaders that would cause infection. Lupus has the potential of causing permanent damage to internal and external organ systems. There is no cure for... Read more »
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Prednisone to the rescue

My latest lupus flare consisted of major doses of prednisone. Prednisone is an anti-inflammatory steroid drug that has helped thousands of people with lupus live functional lives. Lupus is among the autoimmune diseases where the immune system attacks itself. Instead of the immune system warding of infection or the invaders that cause infection, a person... Read more »