Caring for a sick child with autism when you have lupus is dreadful

Caring for a sick child with autism when you have lupus is dreadful

Just when I thought it was safe to go into the water, my son Kameron who has autism, did it to me again--he comes home with a cold from school and I bear the brunt of warding off the germs by any means necessary. I mentioned "again" because Kameron brought home a nasty virus from school last year which I caught and it wasn't pretty.

My immune system was very weak due to a lupus flare I was experiencing and Kameron's cold made it worse. Lupus is an autoimmune disease where the immune system attacks itself, causing damage or potential damage to internal or external organ systems. His virus gave me a horrible middle ear infection that was misdiagnosed as many times as my lupus was in the beginning stages of my illness. Say what you will but I believe when good medical insurance is presented, you're welcome with open arms as many times you like, but that's another story.

Anyhoo, I'm doing everything I can to protect myself from getting sick but who am I kidding? There is no amount of Lysol wipes and sprays that can totally save me although I will keep on keeping on. I wrote a recent blog about how I spend over $100 per month in air fresheners to ward off secondhand cigarette smoke I was smelling from a neighbor's apartment. Now, Lysol is making a killing off of me with their products but what can I do?

The task of killing the germs is no problem because I love to clean; I have the mentality of Felix Unger, if you will. My problem with Kameron is that he is in a current stage of regression which is normal in people with autism. He is totally dependent on me with everything and is not showing any signs of cleaning himself properly when using the bathroom. He never mastered or has the ability of covering his face when he coughs or sneezes and that's tough on me.

Thankfully, my ear infection was resolved by having the fluid drained out of it, which should have been done day one. I'm taking precautionary steps by using Flonase and other products to keep my sinuses clear but good ol' Kameron is giving me a run for my money. At the end of the day, while I'm taking care of him, I have to ask the ancient maternal question "Who's gonna take care of me?"

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Filed under: Lupus, Uncategorized

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