I would rather say getting back to happy one moment at a time but I can't remember the last time I was happy. Besides, happiness is an emotion that fluctuates so I'd rather say getting back to normal, or what I consider normal.
My true normal consists of enjoying the summer months, engaging in aerobic exercise, having an overall great quality of life. Since my lupus diagnosis in 2004, my true normal has been totally stripped out of my life.
My social life has gone to pot due to lupus flares causing joint and muscle pain. There have been many occasions where I could barely get out of bed let alone try to meet up with someone socially. Some lupus flares landed me in the hospital for months, including physical therapy upon release.
This is my current situation; I attend occupational and physical therapy three times per week, to restore muscle damage caused by a lupus flare earlier this year. It was really rough starting therapy because I was on a high dose of prednisone (a corticosteroid) that caused a lot of fluid retention.
Now that my prednisone dose is tapered to where it was originally, I can flow through my exercises better. My clothes fit better and I can actually know what I really weigh. I'm actually enjoying my time at ATI Physical Therapy and I need to figure out what I'm going to do with my time once my schedule is up.
I'm done with therapy mid-September which is perfect. Fall is leaning in and I am totally looking forward to engaging in outdoor activities. I won't miss the summer at all since I couldn't enjoy it anyway.
I'm taking my getting back to normal one moment at a time very seriously because a lupus flare can strike at any moment. Knowing what my triggers are such as watching my stress levels is a major key.
Once that's under control, I can work on getting back to happy.
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Filed under: Health and Wellness