Nova Bordelon is a character on Ava DuVernay's "Queen Sugar", shown weekly on the Oprah Winfrey Network.
Last season, Queen Sugar introduced the lupus disease to its viewers via character Aunt Violet. I was so pleased and impressed to see this because there are millions (including celebs such as Toni Braxton and Nick Cannon) who are suffering from it and it's never told.
Before I get back to Nova's question, I would like to briefly explain what lupus is. Lupus is an autoimmune disease where the immune system attacks itself. It has the potential to cause permanent damage to internal and external organ systems.
I heard Nova's question to her Aunt Violet during a commercial break about that upcoming episode. It's an excellent question Nova but it has a loaded answer. Each case of lupus is different as the person who has it.
However, most people in the lupus community suffer from joint and muscle pain or stiffness. Aunt Violet displays having joint pain in her hands as she's trying to run a successful business as a pie chef. She also displays moments of fatigue which is another symptom of lupus.
Nova admires Aunt Violet's ambition as a businesswoman but she knows that her aunt has a lot of pride. The worst mistake a person with lupus can do is to reject help. This is Aunt Violet's problem.
While I cannot speak for Aunt Violet on how she manages her lupus, here are a few ways I try to manage my symptoms:
- I try to rest as much as possible
- I try to avoid stress (this is my biggest trigger for a flare up)
- I try to keep a steady medication regimen
- I try to get support from family members (my mom and sisters have been great)
I consider myself an independent person like Aunt Violet. I'm a single mom with two sons with autism. I have no time to slow down. Unfortunately, having lupus stopped me in my tracks. It has taught me that I cannot do everything by myself all of the time.
I truly hope that future episodes of Queen Sugar will allow Aunt Violet to know this because it's a true fact of life.
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Filed under: Lupus