As a lupus sufferer, the sun and heat is dangerous to me. I'm sure it's the same for other lupies. I thought that the fall will bring relief but today and the rest of the weekend, the temperature will be in the 90s.
Lupus is an autoimmune disease where the immune system attacks itself instead of fighting off infection the way it should. Lupus affects the majority of childbearing women initially but a percentage of men and children are diagnosed as well.
Lupus affects people in different ways. If you're diagnosed with systemic lupus like me, damage or potential damage to internal and external organ systems may occur.
In my case as mentioned, excessive heat and sunlight is dangerous to me because it may trigger a flare up. The average lupus flare consists of:
- Stiff or achy joints and muscles
- Chronic fatigue
These are just a few but other sufferers may claim something else. It's also normal that lupus sufferers experience depression. It's a total downer that we cannot enjoy summer or engage in rigorous activities in the sun like we used to, if we want to avoid a flare up.
It's kind of contradictory that on one hand, everyone need a bit of sunlight because it helps depression. Sunlight is known to provide vitamin D. On the other hand, for us lupus sufferers, it can cause us to pass out, if we absorb too much.
All is not lost lupies; we can still enjoy the sun but we have to use wisdom. Sunscreen is a must (regardless of skin tone), hydration throughout the day (water, vitamin drinks, no soda) is key, and going out during certain times of the day won't let you feel like a total hermit.
In a few weeks, vengeance will be ours when it gets cool out and it's gonna feel sooo good!
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Filed under: Lupus