Tag: #covid19

The Inevitability of Hope and Change

The Inevitability of Hope and Change
I am standing beside my daughter’s bed, having a serious talk about school. She has no idea what her math homework is. She has no idea where her math homework is. She doesn’t pay attention in class, instead, she watches the students’ chats go by, which are silly and confusing. “One of the boys just... Read more »

100 Ways to Die, or, Kids and Glioblastoma in the Age of Coronavirus

100 Ways to Die, or, Kids and Glioblastoma in the Age of Coronavirus
When the twins were babies, there was a tornado outbreak across Illinois, Iowa, and Indiana. For weeks the local news cycled back to it, and I remember vividly a story about the children of demolished towns playing “tornado” with their toys, making sense of a world full of chaos and destruction by turning it into a... Read more »

Our 13th Glioblastoma Cancerversary

Our 13th Glioblastoma Cancerversary
Thirteen years ago, today, I was sitting in my pajamas, scrolling through my Facebook feed, reading a spectacular number of messages from friends offering me their congratulations on my engagement. Mike and I had gotten engaged the night before, on the most perfect day of my life. There had been literal fireworks, of course, but... Read more »
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Singing While The World Burns

Singing While The World Burns
Last month was our twelfth wedding anniversary. I would have posted about it, but it was a difficult week. He had just finished radiation, just started new chemotherapy, and we had begun to have overnight nursing care come so I could sleep. We were approaching the last days of school. I wanted to write about... Read more »

Restlessness and Radiation in the Rain

Restlessness and Radiation in the Rain
The drive to radiation is wet. Unseasonable rain pounds the windshield, causes semi-trucks to loom larger in the inconsistent traffic. Mike is tired. I am tired. The radiation fatigues his brain to the extreme, and his sleep is interrupted over and over again each night. I am tired because I do not go to bed until... Read more »

Complications of Cancer and Coronavirus

Complications of Cancer and Coronavirus
  Mike spent a few days in the hospital this week. His brain was bleeding. This isn’t exactly to say cancer treatment isn’t going well. It’s not going badly. But there have been complications. With clotting problems, and bleeding problems, and balance problems, and random fevers, and bad medication reactions, and the fact that we’re... Read more »
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An Unfiltered and Exhausted Reflection on My Recently Deceased Sister

An Unfiltered and Exhausted Reflection on My Recently Deceased Sister
One of the most formative moments of my life was the afternoon my older sister first tried to kill herself. I was sixteen, a college student, in the middle of a studio art class I adored. My cell phone rang and I took it into the hall. It was my younger sister, in a rush... Read more »

Singing Diyenu in a Hospital in the Midst of a Plague

Singing Diyenu in a Hospital in the Midst of a Plague
This has been a hard month. Despite the difficulties, I am trying to be mindful. I am trying to be present. And because Passover begins in two days, I am expressing myself through pesadech trope. If they had done a successful surgery but I wasn’t permitted to stay in the hospital, dayenu. If I had been... Read more »

Fury: Women's Lived Experiences During the Trump Era

Fury: Women's Lived Experiences During the Trump Era
It’s a strange thing to have a book come out about how horribly you have been impacted by the Trump presidency, and not to be able to hold it in your hands because you’re trapped in a hospital in large part because of the incompetence of the Trump presidency. It took me an additional four... Read more »
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Brain Surgery in the era of Coronavirus

Brain Surgery in the era of Coronavirus
What follows is the update emailed to our friends and family, regarding today’s very long, long, long experience at the hospital.   Hello, everyone. First, I hope this message finds you all safe, healthy, and not together. As somebody watching health professionals scramble to prepare and accommodate the influx of Covid-19 patients, I urge you to... Read more »