Tag: Being in Charge

Truth, Lies, and Selfies

Truth, Lies, and Selfies
Over the last three months, I’ve spent a lot of time on Snapchat. I know, right, what is it, 2012? But I have. And on my public Snapchat, Mike and kids rarely appear. On Snapchat, my life looks… kind of good. Lots of selfies (my hair has been AMAZING in quarantine, and between my eating restrictions from... Read more »

100 Ways to Die, or, Kids and Glioblastoma in the Age of Coronavirus

100 Ways to Die, or, Kids and Glioblastoma in the Age of Coronavirus
When the twins were babies, there was a tornado outbreak across Illinois, Iowa, and Indiana. For weeks the local news cycled back to it, and I remember vividly a story about the children of demolished towns playing “tornado” with their toys, making sense of a world full of chaos and destruction by turning it into a... Read more »

Our 13th Glioblastoma Cancerversary

Our 13th Glioblastoma Cancerversary
Thirteen years ago, today, I was sitting in my pajamas, scrolling through my Facebook feed, reading a spectacular number of messages from friends offering me their congratulations on my engagement. Mike and I had gotten engaged the night before, on the most perfect day of my life. There had been literal fireworks, of course, but... Read more »
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Restlessness and Radiation in the Rain

Restlessness and Radiation in the Rain
The drive to radiation is wet. Unseasonable rain pounds the windshield, causes semi-trucks to loom larger in the inconsistent traffic. Mike is tired. I am tired. The radiation fatigues his brain to the extreme, and his sleep is interrupted over and over again each night. I am tired because I do not go to bed until... Read more »

Thinking of my Late Sister, On My Birthday

Thinking of my Late Sister, On My Birthday
There’s a numbness that feels like it isn’t numb. I will be going about my business, helping Mike with his rehab, tucking the kids into bed, taking notes on a Teams meeting with doctors or nurses wearing what I assume is a smile on my face. I will be answering emails, or figuring out what load of... Read more »

An Unfiltered and Exhausted Reflection on My Recently Deceased Sister

An Unfiltered and Exhausted Reflection on My Recently Deceased Sister
One of the most formative moments of my life was the afternoon my older sister first tried to kill herself. I was sixteen, a college student, in the middle of a studio art class I adored. My cell phone rang and I took it into the hall. It was my younger sister, in a rush... Read more »
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Brain Surgery in the era of Coronavirus

Brain Surgery in the era of Coronavirus
What follows is the update emailed to our friends and family, regarding today’s very long, long, long experience at the hospital.   Hello, everyone. First, I hope this message finds you all safe, healthy, and not together. As somebody watching health professionals scramble to prepare and accommodate the influx of Covid-19 patients, I urge you to... Read more »

No Rest for the Weary, or, Brain Surgery, Round 4, Fight!

No Rest for the Weary, or, Brain Surgery, Round 4, Fight!
This post was written very late at night on very little sleep, my apologies for any incoherence. You know what, fuck that. I’m not sorry. This post was written before I spent two days in the ER because the poor guy also has influenza A, and I’m just beyond guilt at the way I’m expressing... Read more »

What I Learned from Dropping Out of College

What I Learned from Dropping Out of College
I was fourteen when I started college. I never thought of myself as much of a prodigy, more of a smart kid with a weird string of good luck. When I enrolled in my first college semester, I was terrified and thrilled. I had no idea what I wanted to be when I grew up, and... Read more »
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To the Man Who Threatened My Life at the Pharmacy, on the 75th Anniversary of the Liberation of Auschwitz

To the Man Who Threatened My Life at the Pharmacy, on the 75th Anniversary of the Liberation of Auschwitz
Hello, sir. You probably don’t remember me. I am probably one of a blur of vague, snowflake, millennial types. Or maybe I’m part of a blur of Jews, I don’t know. Maybe I’m just one of the many people you must encounter on your daily to-do that make you seethe with hatred and rage, I... Read more »