Category: Love

The Inevitability of Hope and Change

The Inevitability of Hope and Change
I am standing beside my daughter’s bed, having a serious talk about school. She has no idea what her math homework is. She has no idea where her math homework is. She doesn’t pay attention in class, instead, she watches the students’ chats go by, which are silly and confusing. “One of the boys just... Read more »

100 Ways to Die, or, Kids and Glioblastoma in the Age of Coronavirus

100 Ways to Die, or, Kids and Glioblastoma in the Age of Coronavirus
When the twins were babies, there was a tornado outbreak across Illinois, Iowa, and Indiana. For weeks the local news cycled back to it, and I remember vividly a story about the children of demolished towns playing “tornado” with their toys, making sense of a world full of chaos and destruction by turning it into a... Read more »

Our 13th Glioblastoma Cancerversary

Our 13th Glioblastoma Cancerversary
Thirteen years ago, today, I was sitting in my pajamas, scrolling through my Facebook feed, reading a spectacular number of messages from friends offering me their congratulations on my engagement. Mike and I had gotten engaged the night before, on the most perfect day of my life. There had been literal fireworks, of course, but... Read more »
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Singing While The World Burns

Singing While The World Burns
Last month was our twelfth wedding anniversary. I would have posted about it, but it was a difficult week. He had just finished radiation, just started new chemotherapy, and we had begun to have overnight nursing care come so I could sleep. We were approaching the last days of school. I wanted to write about... Read more »

Complications of Cancer and Coronavirus

Complications of Cancer and Coronavirus
  Mike spent a few days in the hospital this week. His brain was bleeding. This isn’t exactly to say cancer treatment isn’t going well. It’s not going badly. But there have been complications. With clotting problems, and bleeding problems, and balance problems, and random fevers, and bad medication reactions, and the fact that we’re... Read more »

An Unfiltered and Exhausted Reflection on My Recently Deceased Sister

An Unfiltered and Exhausted Reflection on My Recently Deceased Sister
One of the most formative moments of my life was the afternoon my older sister first tried to kill herself. I was sixteen, a college student, in the middle of a studio art class I adored. My cell phone rang and I took it into the hall. It was my younger sister, in a rush... Read more »
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No Rest for the Weary, or, Brain Surgery, Round 4, Fight!

No Rest for the Weary, or, Brain Surgery, Round 4, Fight!
This post was written very late at night on very little sleep, my apologies for any incoherence. You know what, fuck that. I’m not sorry. This post was written before I spent two days in the ER because the poor guy also has influenza A, and I’m just beyond guilt at the way I’m expressing... Read more »

Our Community is Our Miracle

Our Community is Our Miracle
This picture contains so many miracles. See, all this week, Rivka has been talking about spinning her dreidel and getting a nun, which is what she wants. If you know the rules to the game, you DON’T want a nun, you want a gimmel, or a hey. But Rivka wanted a nun, because nun stands... Read more »

On Being There for Each Other

On Being There for Each Other
Four days out of the last seven, we’ve been at the pediatrician’s office first thing in the morning. It would have been more if they had walk-in hours over the weekend, but as it is I’m a horrible brute of a mother and make the kids wait until Monday if they’re not clearly grievously ill.... Read more »
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Understanding the Itchy Tween Brain

Understanding the Itchy Tween Brain
I would love to write about the big things going on over here, but there is simply too much I am not ready to share, and too much floating in a sphere of unknowns. Suffice to say that nobody, NOBODY, outside of Mike and myself know the full extent of the chaos surrounding us at... Read more »