Category: Illness

Sit at a Typewriter and Bleed

Sit at a Typewriter and Bleed
I am writing a novel. I’m telling you this because I want the entire world to be as excited about it as I am, even though it (like pretty much everything I pour my soul into) is a heartbreaker. I am writing a novel. This is in between working three part-time jobs, taking care of... Read more »

Brain Diseases are Real Diseases

Brain Diseases are Real Diseases
You know how it seems like every month is something month? Like, last month was Sexual Assault Awareness Month, March was Colorectal Cancer Awareness Month? May is both Brain Tumor Awareness Month, and Mental Health Awareness Month. I’m sure this wasn’t exactly planned, but I think it’s meaningful that these two awarenesses are overlapping. Back before... Read more »

A Letter from the Future

A Letter from the Future
Dear Lea, I am writing this letter for you to read the night after Mike’s surgery and diagnosis, once you’re sure all your houseguests are asleep. You won’t be sleeping anyway. Five days ago, on the happiest day of your life, Mike asked you to marry him. Four days ago he had a seizure and... Read more »
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When the Angel of Death Passes You Over

When the Angel of Death Passes You Over
On Wednesday, M had another round of MRIs, another meeting with his neuro-oncologist, another of those long days where you are constantly both questioning and trying not to question. They’re hard days. No matter how romantic we get inside the hospital, they’re hard days. In some ways, they’re harder now then they used to be.... Read more »

Brain Cancer, Guns, and My Daily Sh*tshow

Brain Cancer, Guns, and My Daily Sh*tshow
Let’s be honest, mornings are a shitshow. Dragging yourself out of bed so that you can drag other unwilling people out of bed, knowing they will fight you on everything from putting on clean underwear and using the bathroom to putting breakfast in their mouths and their shoes on their feet and zipping their goddamn... Read more »

Nazis and Brain Cancer- A Waiting Game

Nazis and Brain Cancer- A Waiting Game
My husband had a seizure on Friday night. He was driving, halfway between Chicago and Ann Arbor, MI, alone. He was able to pull to the side of the freeway, and I was able to get family to collect him and drive him to me, where I was waiting, three hours away. It could mean... Read more »
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What I've Learned From 10 Years of Brain Cancer

What I've Learned From 10 Years of Brain Cancer
Ten years ago, at this moment, I was meeting my brand new fiancé for lunch, to pick out an engagement ring. He had *meant* to get one before popping the question, but he was never the best planner. So we went together on his lunch break and picked out a gorgeous ring with a lovely... Read more »

On Burnout, and Gratitude

On Burnout, and Gratitude
What I want to write is a wrap-up of my BlogHer17 trip, the friends I made, the blogs you should follow immediately, the lessons I’ve learned… but I can’t just now. I was up all night being sick, and before I could even put clothes on again yesterday morning I was on the phone, talking fundraisers,... Read more »

How Living With Brain Cancer is like Living on A Volcano

How Living With Brain Cancer is like Living on A Volcano
Yesterday was our ninth wedding anniversary. It was a perfect evening. We drank our way across downtown, went to a stand up show, and returned to a hotel room where I’d put champagne on ice with a box of macarons. It was the kind of date every parent of small kids dreams about, a truly... Read more »
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My Congressman Voted to Kill My Family

My Congressman Voted to Kill My Family
Just a few minutes ago, it happened. The House of Representatives voted to deny coverage to my family. To my husband, who has brain cancer and the audacity to survive. To my 7yo daughter, who has asthma. To my 4yo daughter, with a congenital spinal defect. To me, for having been raped, among other things. More... Read more »