Category: Illness

Here We Go Again, ACA Edition

Here We Go Again, ACA Edition
The news is hard to follow lately. I get the feeling this is by design. Headlines include a brand new kind of hurricane heading towards New Orleans (climate change is the cause of the massive rainstorms that have destroyed crops all over the midwest and south, and that moisture drifted over the gulf AND IS CREATING... Read more »

What It Means to be Sickened by the News

What It Means to be Sickened by the News
The word “anger” is not enough. Not when every day I feel assaulted by the events surrounding me. Concentration camps at the border, full of filthy, hungry, cold children. Children sick with flu and with untreated fractures and who are being sexually assaulted en masse in “detention.’ And the word “horrified” is not enough when... Read more »

Playing "Would You Rather" for Brain Tumor Awareness Month

Playing "Would You Rather" for Brain Tumor Awareness Month
Recently, I find myself in need of poetry. I have drafted so many poems in these last few days. For the little boy who was killed in my community, for Sexual Assault Awareness Month, for Brain Tumor Awareness Month, for the victims of the Poway synagogue attack, for my daughters. My feelings have been so... Read more »
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A Love Letter to my Husband on the Occasion of the Second of our Three Children Coming Down with the Flu during the Polar Vortex

A Love Letter to my Husband on the Occasion of the Second of our Three Children Coming Down with the Flu during the Polar Vortex
To my dear, amazing, spectacular husband, I know I’m a difficult person to live with. I’m moody, a dreadful housekeeper, an often reluctant cook despite a love of cooking and a genuine flair for it. I’m a selfish and mercurial lover, I yell at the children, and most importantly, I have sleep problems. Since the... Read more »

Next Year is its own Resolution

Next Year is its own Resolution
There is a desperation that comes at the end of the year. All the things not yet accomplished, all the things to begin fresh with the new year. Lists of goals and resolutions and the abortive calculus of “better than” versus “working on” multiplied by “Things That Have Changed.” After Thanksgiving, it’s all a matter of... Read more »

Young, Naive Cancer

Young, Naive Cancer
When I was 23, my fiancé was diagnosed with glioblastoma- terminal brain cancer. Most of our friends were graduating from college, getting jobs, enjoying the freedom that comes in the years after you turn 21 and you make all your biggest mistakes, but not us. Our lives revolved around chemotherapy, radiation, clinical trials, and managing... Read more »
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An Adventure in Misdiagnosis, for Dysautonomia Awareness Month

An Adventure in Misdiagnosis, for Dysautonomia Awareness Month
I’ve recently learned that October is Dysautonomia Awareness Month, which I found utterly stunning. I thought dysautonomia was a rare disorder, incredibly rare. I was spectacularly wrong. However, it is often misdiagnosed. It takes an average of six years to diagnose dysautonomia. It took five years to diagnose mine. When I was eighteen, I started... Read more »

It's Suicide Prevention Awareness Month, so here's an Expert!

It's Suicide Prevention Awareness Month, so here's an Expert!
September is Suicide Prevention Awareness Month. As you know, I write a lot about mental health, but today I want to hand over this platform to an amazing mental health warrior, Sarah Fader. She’s writing here today about being a mental health advocate for your children, because early intervention is the best intervention, and an active... Read more »

Hot Dogs, Birthdays, and Life's Big Questions

Hot Dogs, Birthdays, and Life's Big Questions
Yesterday was my husband’s thirty-sixth birthday. He has lived a third of his life knowing he has brain cancer. At some point in all of our lives, we have an existential crisis. A moment where we wake up in the morning and say to ourselves, “I’m going to die. One day, I’m going to be... Read more »
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What Fear is Trying to Teach You in the Dark

What Fear is Trying to Teach You in the Dark
During my Complete Mental Breakdown(TM) a few years ago, I fantasized about my husband being killed. Stabbed on a dark train platform on the way home, he clutches his stomach as a small, faceless stranger disappears into the shadows. They take his computer bag, which is later found in a dumpster a block away. Or... Read more »